Resources

This page contains links to sites rich in resources related to best practices and learning activities in support of person-directed care practices. A brief description is provided for each resource site highlighting tools and resources available.

Featured Resources with links to Oregon

Acumentra Health

Acumentra Health, Oregon’s Medicare Quality Improvement Organization (QIO), provides assistance to Oregon nursing homes and professional associations through initiatives to improve clinical care and promote person-centered care. See http://www.acumentra.org/medicare/HAC.php for tip sheets and other helpful resources, including those related to current health and safety initiatives, pain reduction, root cause analysis, and more. See our nursing home resource page for additional information.

Better Jobs Better Care

The Better Jobs Better Care (BJBC) Demonstration Project, 2003-2006 was national demonstration and research initiative funded by the Atlantic Philanthropies and Robert Wood Johnson Foundation. In Oregon, more than 20 organizations partnered to improve recruitment and retention of direct care workers through intensive workplace change efforts in eight longterm care organizations. The Oregon BJBC initiative emphasized building person-centered environments for both workers and residents. Multiple practical tools and resources, including those developed in Oregon, are available through Leading Age.

Enriched Clinical Learning Environments through Partnerships (ECLEPs)

(ECLEPs) was a statewide academic-community partnerships between Schools of Nursing and nursing homes and assisted living residences to be excellent clinical learning sites for nursing students in the Oregon Consortium for Nursing Education (OCNE). Person-centered practices were core to faculty and staff training and student education. The site contains:

Oregon Geriatric Education Center

OGEC Resource Center is part of the Oregon Geriatric Education Center, a consortium of the Oregon Health & Science University, Portland State University, and Oregon State University. The Resource Center maintains a collection of over 1,500 resources, including books, videotapes, DVDs, games, bibliographies, and other instructional materials. Materials can be accessed through the website and are available for loan at no charge.

Pioneer Network

Pioneer Network is a center for all stakeholders in the field of aging and long term care whose focus is on providing home and community for elders. MOVE is an affiliate of the Pioneer Network and participated in the Incubator Project, a national collaborative for using MDS 3.0 for high quality, individualized care. For more, visit:

Other Culture Change Resources

Action Pact, Inc. is a company of trainers, consultants and educators who assist nursing homes and other elder care organizations in becoming resident-directed.

Advancing Excellence in America’s Nursing Homes. This voluntary campaign monitors key indicators of nursing home care quality, promotes excellence in caregiving for nursing home residents, and acknowledges the critical role nursing home staff has in providing care. The campaign depends on Local Area Networks for Excellence (LANEs) to implement the campaign and builds on other quality initiatives like Quality First, the Nursing Home Quality Initiative (NHQI), the 8th Scope of Work for Quality Improvement Organizations (QIOs), and the Culture Change movement.

Almost Home: Changing Aging in America. This companion web site to the PBS documentary, Almost Home, pulls back to give you the bigger picture and see what is happening since filming completed.

American Association of Homes and Services for the Aging (AAHSA) help millions of individuals and their families every day through mission-driven, not-for-profit organizations dedicated to providing the services that people need, when they need them, in the place they call home. AAHSA’s commitment is to create the future of aging services through quality people can trust.

American Health Care Association (AHCA) is a non-profit federation of affiliated state health organizations, together representing more than 10,000 non-profit and for-profit assisted living, nursing facility, developmentally disabled, and subacute care providers that care for more than 1.5 million elderly and disabled individuals nationally.

Center for Excellence in Assisted Living (CEAL) is a non-profit collaborative of 11 national organizations which aims to promote high quality assisted living and serve as an objective national clearinghouse and convener for research, practices, and policies that foster quality and affordability in assisted living.

The mission of The Commonwealth Fund is to promote a high-performing health care system that achieves better access, improved quality, and greater efficiency, particularly for society’s most vulnerable, including low-income people, the uninsured, minority Americans, young children, and elderly adults. The Fund carries out this mandate by supporting independent research on health care issues and making grants to improve health care practice and policy. The publications page has a wealth of articles and reports presenting research funded by The Commonwealth Fund. (Note: Some of those publications are included on MOVE’s publication page, such as: Implementing Change in Long-Term Care: A Practical Guide to Transformation).

Dementia Action Alliance Research Group. The Dementia Action Alliance is a national partnership to coalesce and connect people, organizations, and communities to come together for collective impact to help people who have dementia and their care partners live well with dementia. The Alliance is led by CCAL-Advancing Person-Centered Living, AMDA: The Society for Post-Acute and Long-Term Care Medicine, Broyles Foundation CareGivers United, LeadingAge/Georgia, Planetree, and The Eden Alternative. “Person-Centered Matters” is a beautiful and compelling 16-minute video produced by the Dementia Action Alliance and filmed by a former National Geographic filmmaker. It portrays five people living with dementia and how person-centered care helps them live more fully. You can find the video here: http://www.ccal.org/person-centered-matters-video

The Eden Alternative™ began in 1992 as an effort to improve quality of life for nursing home residents. Their mission is “to improve the well-being of Elders and those who care for them by transforming the communities in which they live and work… [They] create coalitions of people and organizations that are committed to creating better social and physical environments for people.”

Green Houses® are homes for 6 to 10 elders who require skilled nursing care and want to live a rich life through environments that support privacy, autonomy, enjoyment and a place to call home. Green Houses® are developed and operated by long-term care organizations in partnership with the Green House Project and NCB Capital Impact.

The Learning Community for Person Centered Practices envisions a world where all people have positive control over the lives they have chosen for themselves. Our efforts focus on people who have lost or may lose positive control because of society’s response to the presence of a disability. This site helps us foster a global learning community that shares knowledge for that purpose. All are welcome here to share and learn.

LEAP, Mather Lifeways, is a comprehensive workforce development program that empowers staff, increases retention, and promotes staff-resident relationships through a model of personcentered care. Hundreds of senior living and long-term care (LTC) communities across the U.S. have participated in LEAP train-the-trainer workshops.

Live Oak Institute, based in Berkeley, California, is in the business of developing the communities and culture that give meaning, purpose, and power to the role of elder.

Medicare Quality Improvement Community (MedQIC), sponsored by CMS, is a national knowledge forum for healthcare and quality improvement professionals and provides easy access to quality improvement resources and a community of professionals.

Oregon Health Care Association (OHCA). OHCA is one of the state’s leading trade associations, representing over 570 members who provide services to over 40,000 people each day and employ more than 30,000 Oregonians. Members include for profit and not for profit organizations, multi facility health systems and industry partners. OHCA promotes high quality care and services through professional development and effective advocacy in the shaping of public and private policy.

PHI, Quality Care through Quality Jobs is working to transform long-term care in the United States by addressing the direct-care workforce crisis. Creating quality jobs for direct-care workers is essential to providing high-quality, cost-effective services to long-term care consumers. PHI has developed several training programs, including Coaching Supervision, which introduces supervisors of direct-care workers to the skills they need to effectively help workers solve problems and improve work performance.

Picker Institute sponsors education and research in the field of patient-centered care in cooperation with educational institutions and other interested entities and individuals. The institute’s goal is to foster a broader understanding of the practical and theoretical implications of patient-centered care by approaching healthcare with a focus on the concerns of patients and other healthcare consumers.

Planetree is an internationally recognized leader in patient-centered care. In healthcare settings throughout the United States, Canada, and Europe, Planetree is demonstrating that patientcentered care is not only an empowering philosophy, but a viable, vital, and cost-effective model. Originally focused on acute care experiences, Planetree has partnered with many organizations on long-term care culture change initiatives. Through organizational transformation, the Planetree Model creates healing environments in which individuals are active participants and caregivers are enabled to thrive.

Sharing Innovations in Quality (SIQ): Resources for Long-Term Care is sponsored by the Centers for Medicare and Medicaid Services (CMS) and hosted by the American Institutes for Research (AIR). It includes summaries of clinical standards and guidelines.

PLANTING THE SEEDS OF CULTURE CHANGE IN ELDER CARE

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